Hello, I finally got a minute to update the blog! We have been in St. Paul since Monday and plan to be here through the weekend. Sam got hooked up to the EEG on Tuesday afternoon and has been absolutely amazing! We are so proud of him. He will remain hooked up to the EEG as long as possible so the Doctors can continue to monitor his seizures while medication changes are made. He had over 100 seizures during the first 24 hours he was in the hospital. We are definitely glad that we made the trip!
Sam had a tougher day yesterday. He has a bit of "cabin fever" and the EEG leads are getting itchy since they are super glued to his head! Sam often bangs at his head when he is in discomfort, so he will be fitted for a soft sided helmet while we are here. A new medication was started yesterday too, so we will see how he does today. We are less than thrilled with the side effects of this med, but the doctor feels that it is the best choice for Sam.
My parents and Jeff's mom are here with us and we are so blessed to have their help! We appreciate all of your prayers during this challenging time and we also know that they are working because Sam has been such a good boy!
4 comments:
Just wanted you to know we've been thinking of you! Thanks for the update.
We love you guys so much. I am praying every day that everything goes well and that Sammy can be relieved of his seizures. Come home soon!
Hey Sam, Erin & Jeff
So glad to hear that the trip has been worthwhile! We miss you in the neighorhood! We are praying that there continues to be success and that things continue to go well. Please let us know if we can help in anyway! We love you and miss you!!!
You are in our prayers Sam! We are thinking of you!
All our love,
The Schoolfields
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