Mayo Trip #2

We survived our second trip to Rochester last week! It did not go as well as the previous trip. Sammy had a very difficult day on Thursday due to the tough eye exam he had first thing in the morning. Needless to say, we heard sounds out of our little man that we had never heard before and never want to hear again! He was so upset and we were sure that he was going to have a seizure during the appointment, but he waited until we made it back to the room. After he finally calmed down, he had a big seizure lasting about 6 minutes and we had to give him meds to stop it. Jeff and I decided that it is going to be a very long time before he has another eye exam! We didn't learn very much new in relation to his eyes, however, we did learn that the Mayo Dr's think his eyes are even worse than we had previously thought. His retinas are detached in addition to the previous six or so problems he has already had diagnosed. The visit with the geneticist went fine and Sam had blood drawn for further genetic testing. Unfortunately, we have to wait until the end of July before we will have results back. The doctor thought that Sam may have characteristics of a couple of different syndromes, so we will have to wait and see. We are happy to be back home and do not plan a return trip to Rochester until fall. The sleep study and behavioral psychologist appointments our 4-5 months out on the schedule. I guess since we have survived for 5 1/2 years without much sleep, another 4 or 5 months won't make much difference! We continue to thank the Lord for our humor and our ability to keep the glass half full!