Sunday, October 04, 2009

Sam has ear and sinus surgery at Avera Mckennan

After a tough summer and fall, we finally got Sam in to have surgery on his ears and sinuses! He struggled with infections all summer and after four different antibiotics and countless trips to see his doctors, we decided it was time! He had surgery to replace his ear tubes, clean out fluid found in the middle ear, cut out adenoid tissue that had regrown, and he also had a sinuplasty http://www.youtube.com/watch?v=x7WlyWTFWrc(balloon procedure to inflate the sinuses.) His seizure activity has also dramatically increased since June. He has averaged up to 60 seizures daily. We are hoping this will decline once he is healthy again. We are planning a trip to Minneapolis in the near future to once again try to find a doctor that can help control his seizures. Also, we did some more genetic testing in September which resulted in no new information. We were discouraged by the results, but will continue to search for a diagnosis for Sam in hopes that we will be able to better treat his complex seizure disorder. As a result of the chronic infections and seizures, we have seen a big decline in his motor skills and ability to bear weight on his legs. I will try to keep the updates coming. Thanks for continuing to keep Sam and our family in your prayers.

3 comments:

JB said...

Thanks for the updated blog - great job. Luv ya'll.

Helper #1 said...

Thanks for the pictures and update.

Anonymous said...

Sure hope Sam is feeling better! You are all so amazing and am in awe of your faith and strength! Love you and hope to see you all soon!