Our CCHS Home...

Here are some updates from the past week. We (Sam and I at night and Jeff in the evenings after work) are currently living in the Fisher-Coon Unit at Children's Care Hospital and School. It is the medically complex part of CCHS. Sam is on IV antibiotics 6 times per day and has had new ones added and changed daily. I believe that his doctor together with the infectious disease doctor have found the two they need to get rid of the junk that grew out from the cultures taken last week. However, that means that Sam is hooked up to IV meds for at least 13 more days. He is being a good boy despite all of the poking and prodding! It looks like he will be transfering back to the hospital after our stay here for surgery and a g-tube placement. This is a heart wrenching decision for us! We are confident in our doctors recommendations, however, we do not want to make the wrong choice for our Sammy! He will have a very difficult recovery for about 8 weeks after the surgery. We will probably return to CCHS during the recovery time and not be home for quite awhile. We are so thankful for all of the prayers and encouragement that we have received over the past few weeks. Please continue to pray for Sam's health, guidance for our difficult decisions, patience for Sam's recovery and for Jeff and myself. We are used to not spending much time together, but at least we are usually in the same house at night. Being in different zip codes is a bit of an adjustment! I have added a few pictures of Sam's room at CCHS and one of him playing with his piggies. We are anxiously awaiting bringing him home again.