Avera, CCHS, Avera, CCHS, Avera......

Sam continues to struggle with feeding issues and stomach discomfort, so he was re-admitted to Avera on Monday. He will have another colonoscopy to determine if there are GI problems contributing to his eating issues. He is still not tolerating full feedings through his g-tube and has tried seven different formulas so far. Our results are the same on all of them--pain, gas and intense stomach and abdominal pain!. For some reason he is only content when he has pedialyte in his tummy. We are trying to figure out why he does not tolerate formula and why he has had blood in his stools for the past week. Food through his g-tube or by mouth seems to aggravate his stomach. Please keep praying for us and for the doctors on our team who are working to help Sammy feel better! We are still hopeful that we may get to go home sometime this year!!!

My boys in the above picture after Sam finally fell asleep at 2am this morning!

Eye Exam Update

Finally we have GOOD news!!! After sedating Sam for another eye exam today, we found out that the pressure has decreased 10 points in his left eye! The drops are working and his pain and pressure have decreased too. He will remain on three different eye drops until we have the eye re-checked in 4-6 weeks. The drops are not exactly easy to put in given Sam's level of movement, but we will keep doing our best to get them in three times a day since they are working so well. What's another few drugs when his collection is already this large!