Friday, October 27, 2006

More Seizures

We had thought we were out of the woods with Sam's seizures since we made it two weeks without one, but spent the afternoon in the ER again. His medications are at a theraputic level and should be controlling his seizures, but he had one on Tuesday afternoon, three short seizures on Wednesday and a very involved one this afternoon. We chose to bring him home (he had a second seizure this evening) with an IV in instead of spending the night in the hospital. We will be back in on Friday morning to see his doctor. Please continue to pray for Sam's healing and for the seizures to be controlled. We so greatly appreciate everyone's love and support.

Tuesday, October 10, 2006

A day in the life...

Well, today was quite a day! Sam was full of challenges. This morning began with Sam deciding to poop while sitting in my lap and the diaper didn't quite do its job, if you know what I mean! He was in a great mood, but had a seizure at 12:30 while I was getting him dressed after his bath. This one lasted about three minutes and then he took a two and a half hour nap. When he woke up he went potty and the diaper again did not do its job! Needless to say, Sam and I wore a lot of clothes and I did a lot of laundry. He also vomitted all over the living room around 4:30 leading to his second bath of the day. Sorry for the yucky details, I guess I just needed to vent a bit. Keep praying that the seizures stop. When I talked to the neurologist today he said he would like to give the new meds time to work. It is hard to be patient during this time but we know that he is right. Sam will have his levels checked in two weeks when the meds are at full strength. Thanks for all of the comments and prayers!

Saturday, October 07, 2006

Thank You!!!

Thank you to everyone who has been sending words of encouragement and prayers for Sam and our family! Sam had another seizure on Monday night lasting about four minutes. We visited with his Dr.'s office on Tuesday morning and it was agreed to switch medications. He is now off of the med that we used for 2 1/2 years and on two new seizure meds. We will ramp up the dose over the next three weeks and then check blood work in the fourth week. We are hopeful that this will be the answer to getting the seizures controlled.

We went out to the disability expo this evening hoping to find something to aid in lifting Sam out of the bath tub. He is a slippery heavy little guy when wet! We are also in the process of purchasing a canopy bed for Sam that will allow him a safe environment to be in at night. The sleeping issues are not improving and we hope that this bed will help with that issue. Sam is using a walker in therapy and seems to be really enjoying walking and making some progress. We are so thankful to see this, as we have seen quite a bit of regression since the seizures began again. Thank the Lord for giving us some reassurance in this area!